Sample Social Media Posts
Feel free to copy these and share to your accounts along with an #IExistToo video
General Awareness
🚨 Time is muscle. Every day without treatment is another day of loss for families fighting FSHD. Some have access; others are left behind. We deem this unethical, and it must stop.
Join us in demanding equity in treatment access for all—because no patient should be left out. Sign the petition today!
🔗 https://bit.ly/CureFSHDForAll
#IExistToo #CureFSHDforALL
Sign Petition
💪 Together, we can ensure FSHD clinical trials are inclusive for EVERYONE—no matter their age or ability. Sign the petition today and make your voice heard! Let’s fight for a cure that leaves no one behind. 🖊️ #InclusiveTrials #IExistToo https://bit.ly/CureFSHDForAll
#IExistToo
📣 I’m joining the #IExistToo movement because everyone living with FSHD deserves access to treatment! Share your story, use #IExistToo, and help us raise awareness about the importance of inclusive clinical trials. Together, we can create change. 💙
Share Info
Did you know that people under 18, over 65, and wheelchair users are often excluded from FSHD clinical trials? This means treatments might not be accessible to everyone. Let’s change that! Share why inclusion matters and help us advocate for a cure for ALL. 🌍 #InclusiveTrials #IExistToo